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NY S07838

Bill

Status

Introduced

8/15/2012

Primary Sponsor

Eric Adams

Click for details

Origin

Senate

2011-2012 General Assembly

AI Summary

  • Requires adrenoleukodystrophy (ADRENOLEUKODYSTROPHY) to be added to the list of diseases screened for in newborn testing, alongside phenylketonuria, sickle cell disease, hypothyroidism, branched-chain ketonuria, galactosemia, and homocystinuria

  • Mandates that institutions caring for infants 28 days or younger administer screening tests to all infants in their care

  • Directs the commissioner of health to prescribe the timing, manner, and procedures for testing, recording results, tracking, follow-up reviews, and educational activities

  • Requires the commissioner to promulgate regulations on how information describing the purposes of newborn screening requirements shall be disseminated to parents or guardians

  • Takes effect 180 days after becoming law, with immediate authorization for the commissioner to adopt necessary rules and regulations for implementation

Legislative Description

Enacts Aidan's law to require adrenoleukodystrophy screening of newborns.

Last Action

REFERRED TO RULES

8/15/2012

Committee Referrals

Rules8/15/2012

Full Bill Text

No bill text available