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NY S05216
Bill
Status
11/28/2016
Primary Sponsor
Diane Savino
Click for details
AI Summary
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Establishes a lupus education and outreach program under Public Health Law Section 207, recognizing lupus as a serious autoimmune disease affecting multiple organ systems.
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Requires the program to include an advisory council with representatives of people with lupus, their families, and healthcare providers specializing in lupus treatment.
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Authorizes the Commissioner of Health to accept grants from public and private sources and make grants to public or not-for-profit entities for program implementation, within appropriated amounts.
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Identifies lupus as disproportionately affecting women, particularly women of color (African-Americans, Hispanics, Asians, and Native Americans at 2-3 times higher rates), with no new FDA-approved drugs in nearly 40 years.
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Takes effect immediately upon enactment.
Legislative Description
Creates an education and outreach program for the autoimmune disease known as lupus; provides for an advisory council consisting of representatives of people with lupus and their families and health care providers who specialize in treating lupus.
Last Action
SIGNED CHAP.479
11/28/2016