NY K01063

Requests Governor Kathy Hochul proclaim June 13-19, 2022, as Sickle Cell Disease Awareness Week in New York State, coinciding with World Sickle Cell Awareness Day on June 19, 2022.

Identifies sickle cell disease as a chronic hereditary blood disorder affecting approximately 100,000 Americans, with about 10% of patients (10,000) residing in New York State and 80% concentrated in the New York City area.

Notes that up to 40% of children with sickle cell disease will experience either silent or clinical stroke by age 18, which can affect learning and employment.

States sickle cell disease is the most costly condition per patient to New York State Medicaid at $15,000 per patient annually.

Specifies that bone marrow or stem cell transplantation is the only known cure for sickle cell disease.