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NY A04138
Bill
Status
12/13/2024
Primary Sponsor
Karen McMahon
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AI Summary
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Creates a Down syndrome awareness program within the Department of Health to provide health care providers with up-to-date and evidence-based information about Down syndrome in written or alternative formats.
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Requires the program to include information on physical, developmental, educational, and psychosocial outcomes; life expectancy; clinical course; intellectual and functional development; intervention or treatment options; hotlines; resource centers; and national and local organizations.
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Mandates the Commissioner of Health to ensure all provided information is culturally and linguistically appropriate for all recipients.
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Requires the Commissioner to meet annually with representatives from the Down syndrome community to keep information current.
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Takes effect immediately upon enactment.
Legislative Description
Creates a Down syndrome awareness program to provide up-to-date and evidence-based information on Down syndrome to health care providers who order tests for a pregnant woman or infants to screen for Down syndrome.
Last Action
approval memo.27
12/13/2024