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NY A09682
Bill
Status
4/3/2024
Primary Sponsor
Michael Fitzpatrick
Click for details
AI Summary
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Adds hereditary hemorrhagic telangiectasia, thoracic aortic aneurysms, and Marfan syndrome to the state's newborn screening program through gene sequencing.
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Requires health care practitioners to provide pregnant women with materials about being potential carriers of these conditions and available prenatal screening options.
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Mandates teachers complete annual training on identifying and responding to pupils experiencing brain arteriovenous malformation, brain aneurysm, or stroke, with documentation kept in personnel files.
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Requires the Department of Health to develop annual training programs for police officers and emergency medical services personnel on protocols for identifying and responding to brain arteriovenous malformation, brain aneurysm, or stroke.
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Requires schools to provide parents of kindergarten-entering children with educational materials about brain arteriovenous malformation, brain aneurysms, and genetic testing options for hereditary conditions.
Legislative Description
Enacts Paige's law to provide education and awareness regarding brain arteriovenous malformation and brain aneurysms, as well as information on being a potential carrier of hereditary hemorrhagic telangiectasia, thoracic aortic aneurysms, Marfan syndrome and related disorders and genetic testing for such conditions and disorders.
Last Action
referred to health
4/3/2024