NY S07874

Establishes a state frontotemporal degeneration (FTD) registry under the Department of Health in conjunction with the State Office for the Aging to collect incidence and epidemiological data on FTD and related dementias.

Creates a frontotemporal degeneration registry advisory committee with 11 required member categories (including neurologists, patients, caregivers, and researchers) selected by the governor, legislature, and commissioner to guide registry development and implementation.

Requires hospitals, physicians, physician assistants, and nurse practitioners to report all diagnosed cases of FTD to the department, with patients permitted to opt-out of expanded data collection while maintaining basic incidence reporting.

Mandates annual reports to the legislature and governor beginning January 1, 2025, including incidence/prevalence by county, demographic data, new diagnoses, treatment advancements, patient resources, and misdiagnosis statistics.

Requires the Department of Health to establish a public webpage by January 1, 2025, called the "New York State Frontotemporal Degeneration Research Registry" displaying registry information, yearly summaries, and relevant data; protects all collected patient information as confidential with strict restrictions on disclosure.