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NY A05873
Bill
Status
2/24/2025
Primary Sponsor
Chantel Jackson
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AI Summary
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Requires testing entities to notify the institution caring for an infant or child diagnosed with sickle cell disease, and mandates that parents receive educational pamphlets covering genetic counseling, sickle cell trait inheritance risks, and available support services
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Establishes a sickle cell disease registry within the Department of Health to track individuals diagnosed with sickle cell trait and maintain educational materials for the public and healthcare providers
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Requires the registry to notify parents of diagnosed children about follow-up consultations at key intervals: early adolescence (before strenuous athletic activities) and later adolescence (regarding reproductive implications)
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Mandates physicians attend bi-annual continuing education training through the registry, and requires revision of medical school curriculum on sickle cell trait and disease
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Requires the Commissioner of Health to submit an annual written report by February 1st to legislative leaders and the public on information collected under this program
Legislative Description
Requires persons and parents of children who test positive for sickle cell disease are informed of such diagnosis and provided with educational materials; establishes a registry of persons with sickle cell disease; requires the department of health issue an annual report on sickle cell disease.
Last Action
referred to health
1/7/2026