Loading chat...
NY A05977
Bill
Status
2/25/2025
Primary Sponsor
Michael Fitzpatrick
Click for details
AI Summary
-
Adds hereditary hemorrhagic telangiectasia, thoracic aortic aneurysms, Marfan syndrome, and related disorders to the newborn screening panel through gene sequencing
-
Requires health care practitioners providing prenatal care to give pregnant patients information about being potential carriers of these conditions and available screening options
-
Mandates annual training for teachers on identifying and responding to students experiencing brain arteriovenous malformation, brain aneurysm, or stroke, with completion documentation kept in personnel files
-
Directs the Commissioner of Health to develop annual training programs for police officers and emergency medical services personnel on protocols for identifying and responding to individuals experiencing brain arteriovenous malformation, brain aneurysm, or stroke
-
Requires schools to provide parents of kindergarten students with educational materials about brain arteriovenous malformation, brain aneurysms, and genetic testing options for related hereditary conditions
Legislative Description
Enacts Paige's law to provide education and awareness regarding brain arteriovenous malformation and brain aneurysms, as well as information on being a potential carrier of hereditary hemorrhagic telangiectasia, thoracic aortic aneurysms, Marfan syndrome and related disorders and genetic testing for such conditions and disorders.
Last Action
referred to health
1/7/2026