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NY A10521

Bill

Status

Introduced

3/6/2026

Primary Sponsor

Andrew Hevesi

Click for details

Origin

Assembly

2025-2026 General Assembly

AI Summary

  • Adds five rare genetic diseases to New York's mandatory newborn screening panel: CLN2 (late-infantile neuronal ceroid lipofuscinosis type 2), MPS IVA, MPS VI, MPS VII, and Fabry disease

  • Amends Public Health Law section 2500-a by adding new paragraphs (l) through (p) to the existing list of required screenings

  • All five conditions are lysosomal storage disorders, which are progressive genetic diseases that can benefit from early detection and treatment

  • Takes effect immediately upon passage

  • Introduced by Assembly Member Hevesi and referred to the Committee on Health

Legislative Description

Adds CLN2, MPS IVA, MPS VI, MPS VII and Fabry diseases to the newborn screening panel for New York state.

Last Action

referred to health

3/6/2026

Committee Referrals

Health3/6/2026

Full Bill Text

No bill text available