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NY J01649
Resolution
Status
Passed
3/5/2026
Primary Sponsor
Dean Murray
Click for details
AI Summary
- Requests Governor Kathy Hochul to proclaim June 30, 2026, as Arthrogryposis Awareness Day in New York State
- Arthrogryposis Multiplex Congenita (AMC) is a rare condition occurring in 1 in 3,000 live births, causing multiple joint contractures present from birth with limited flexibility and low muscle tone
- Over 400 types of Arthrogryposis have been identified, with 20-30% of affected newborns dying due to lethal genetic types or severe central nervous system dysfunction
- No cure exists for AMC, but treatments including stretching, serial casting, physical/occupational/speech therapy, splinting, bracing, and surgical interventions can improve independence and quality of life
- Families across New York and the nation will wear blue on June 30, 2026, to honor those affected by Arthrogryposis
Legislative Description
Memorializing Governor Kathy Hochul to proclaim June 30, 2026, as Arthrogryposis Awareness Day in the State of New York
Last Action
ADOPTED
3/5/2026
Committee Referrals
Finance2/26/2026
Full Bill Text
No bill text available