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OH SB99
Bill
Status
2/24/2021
Primary Sponsor
Michael Rulli
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AI Summary
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Establishes a Parkinson's disease registry within the Ohio Department of Health to collect and disseminate data on incidence, prevalence, and epidemiological information about Parkinson's disease and related conditions (Parkinsonisms).
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Requires healthcare professionals (physicians, certified nurse practitioners, clinical nurse specialists, physician assistants) and health care facilities to report cases of Parkinson's disease and Parkinsonisms to the registry as soon as practicable after diagnosis or treatment.
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Creates a Parkinson's Disease Registry Advisory Committee with nine members (physicians specializing in neurology, movement disorders, and primary care; researchers; patient representatives; and public health experts) to develop and update the list of reportable conditions and determine data collection standards.
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Establishes participant protections including mandatory written notice to patients of registry participation, confidentiality of all data with a coding system to remove identifying information, and the right to opt-out of data collection beyond the initial diagnosis report.
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Adds failure to report Parkinson's disease cases as a violation subject to disciplinary action for certified nurse practitioners, clinical nurse specialists, physicians, and physician assistants under existing regulatory frameworks; implementation required within 6-12 months of effective date.
Legislative Description
Establish Parkinson's disease registry
Health and Human Services : Health Care
Last Action
Refer to Committee: Health
3/3/2021