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OK HR1069

Resolution

Status

Passed

5/10/2016

Primary Sponsor

Emily Virgin

Click for details

Origin

House of Representatives

2016 Regular Session

AI Summary

  • Declares May 2016 as Ehlers-Danlos Syndrome Awareness Month in Oklahoma
  • Acknowledges that Ehlers-Danlos Syndrome comprises multiple genetic disorders involving connective tissue mutations characterized by joint instability and fragile skin
  • Notes that six major types of the syndrome exist, with vascular Ehlers-Danlos Syndrome being the most severe, affecting an estimated 1 in 5,000 people worldwide
  • States that no treatment or cure currently exists, but support groups and further medical research and awareness can improve patient outcomes and quality of life
  • Directs distribution of the resolution to Jessica Adelman

Legislative Description

Resolution declaring May as Ehlers-Danlos Syndrome Awareness Month; distribution.

Last Action

Enrolled, signed, filed with Secretary of State

5/10/2016

Full Bill Text

No bill text available