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OK HB1576
Bill
Status
5/29/2025
Primary Sponsor
Mark Lawson
Click for details
AI Summary
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Oklahoma Health Care Authority must provide Medicaid coverage for rapid whole genome sequencing as a separately payable service for beneficiaries under 21 years of age who have complex or acute illnesses of unknown cause and are receiving care in a hospital ICU or high acuity unit
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Rapid whole genome sequencing must return preliminary positive results within 7 days and final results within 15-21 days, and includes patient-only testing or duo/trio testing with biological parents
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Coverage is subject to medical necessity criteria including conditions such as congenital anomalies, refractory seizures, abnormal cardiac testing, metabolic disorders, and family genetic history suggesting a genetic etiology
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Genetic data generated from testing is protected under HIPAA and may only be used for scientific research with express patient or guardian consent, with the right to rescind consent and have data expunged at any time
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Effective date is July 1, 2025, with an emergency clause allowing immediate effect upon passage and approval
Legislative Description
Medicaid; terms; Oklahoma Health Care Authority; coverage; Medicaid; criteria; medical necessity; discretion; Chief Operating Officer; Health Information Portability and Accountability Act; scientific research; consent; research; opting-out; minors; promulgation of rules and regulations; waiver application; effective date; emergency.
Last Action
Filed with Secretary of State
5/29/2025