OK SB207

Establishes the Oklahoma Rare Disease Advisory Council within the State Department of Health to provide guidance on the needs of individuals with rare diseases, with the Governor appointing the chair by December 1, 2025, and initial meeting required by February 1, 2026

Council membership requires at least 13 members including healthcare providers, rare disease patients and caregivers, representatives from the Oklahoma Health Care Authority, Insurance Department, biopharmaceutical industry, health plans, and academic researchers

Council responsibilities include conducting public hearings, developing policy recommendations for patient access to care, establishing emergency planning protocols for rare disease patients, and identifying research opportunities and health equity best practices

Modifies newborn screening requirements to mandate screening for at minimum all disorders on the federal Recommended Uniform Screening Panel (previously required screening to be "identical to" the panel)

Requires the State Department of Health to publish an annual report beginning November 1, 2026, detailing disorders screened for and efforts to add additional disorders; effective July 1, 2025