OR HB2457

Establishes the Rare Disease Advisory Council within the Oregon Health Authority to develop policy recommendations, advise government officials, and provide information and support for persons affected by rare diseases (defined as conditions affecting fewer than 200,000 people in the United States)

Requires the Governor to appoint at least 20 members including physicians, geneticists, nurses, mental health providers, health researchers, patients, caregivers, and representatives from state agencies, insurance, and the life sciences industry

Members serve four-year terms with eligibility for up to three reappointments; members receive no compensation but may be reimbursed for travel expenses

Council members must be appointed by March 1, 2026, with regular meetings beginning by June 1, 2026

Requires a biennial report to the Governor and Legislative Assembly by December 15 of each even-numbered year (first due December 15, 2028), plus a special report on the number and needs of rare disease patients due by July 1, 2027