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PA HB1530
Bill
Status
12/16/2025
Primary Sponsor
Danilo Burgos
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AI Summary
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Direct-to-consumer genetic testing companies must obtain express consent from Pennsylvania residents before collecting, using, or disclosing genetic data, with separate consent required for third-party transfers, sample retention after testing, research purposes, and marketing
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Companies must provide clear privacy policies, implement comprehensive security programs, and give consumers the ability to access their genetic data, delete their accounts, and request destruction of biological samples
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Disclosure of genetic data to health insurers, life insurers, long-term care insurers, or employers is prohibited without the consumer's written consent
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Law enforcement access to genetic data requires valid legal process unless the consumer provides express written consent; exemptions exist for crime scene evidence and identifying deceased individuals
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The Attorney General may bring civil actions with penalties of $2,500 per violation plus actual damages and attorney fees; the act takes effect 60 days after enactment
Legislative Description
Providing for duties of direct-to-consumer genetic testing companies and for prohibition on disclosure of genetic data of consumers; and imposing civil penalties.
Last Action
Referred to Consumer Protection & Professional Licensure
12/22/2025