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PA HB1530

Bill

Status

Engrossed

12/16/2025

Primary Sponsor

Danilo Burgos

Click for details

Origin

House of Representatives

2025-2026 Regular Session

AI Summary

  • Direct-to-consumer genetic testing companies must obtain express consent from Pennsylvania residents before collecting, using, or disclosing genetic data, with separate consent required for third-party transfers, sample retention after testing, research purposes, and marketing

  • Companies must provide clear privacy policies, implement comprehensive security programs, and give consumers the ability to access their genetic data, delete their accounts, and request destruction of biological samples

  • Disclosure of genetic data to health insurers, life insurers, long-term care insurers, or employers is prohibited without the consumer's written consent

  • Law enforcement access to genetic data requires valid legal process unless the consumer provides express written consent; exemptions exist for crime scene evidence and identifying deceased individuals

  • The Attorney General may bring civil actions with penalties of $2,500 per violation plus actual damages and attorney fees; the act takes effect 60 days after enactment

Legislative Description

Providing for duties of direct-to-consumer genetic testing companies and for prohibition on disclosure of genetic data of consumers; and imposing civil penalties.

Last Action

Referred to Consumer Protection & Professional Licensure

12/22/2025

Committee Referrals

Consumer Protection & Professional Licensure12/22/2025
Appropriations11/19/2025
Consumer Protection, Technology and Utilities5/30/2025

Full Bill Text

No bill text available