PA HR137

Designates May 17, 2025, as "World Neurofibromatosis Awareness Day" in Pennsylvania, aligning with the Children's Tumor Foundation's annual observance

Neurofibromatosis affects more than 4 million people worldwide, with 1 in every 2,000 births diagnosed with the condition

Three types exist: NF type 1 (most common, 1 in 2,500 births), NF type 2 (rarer, 1 in 60,000 people), and schwannomatosis (symptoms typically appear ages 25-30)

The genetic disorder causes tumors on nerves throughout the body and can lead to blindness, deafness, bone abnormalities, learning disabilities, chronic pain, and cancer

No cure currently exists and no medications have been approved to treat the condition, though research into treatments continues