PA HR270

Designates June 23, 2025, as "Dravet Syndrome Awareness Day" in Pennsylvania, coinciding with International Dravet Syndrome Awareness Day

Dravet syndrome is a rare genetic form of epilepsy affecting approximately 1 in 16,000 babies, with about 20,000 people in the United States living with the condition

Patients face a 15% to 20% mortality rate due to sudden unexpected death in epilepsy, prolonged seizures, seizure-related accidents, and infections

The Children's Hospital of Philadelphia (CHOP) Epilepsy Neurogenetics Initiative is recognized as a Dravet Comprehensive Care Center by the Dravet Syndrome Foundation

Treatment options include anticonvulsant drugs, FDA-approved purified cannabidiol, dietary therapy, vagus nerve stimulation, and supportive therapies including physical, occupational, and speech therapy