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PA HR302
Resolution
Status
9/4/2025
Primary Sponsor
Gregory Scott
Click for details
AI Summary
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Designates the Pennsylvania Department of Health to conduct comprehensive data collection on sickle cell disease to better quantify its scope and impact on patients, communities, and states nationwide
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Urges federal policymakers to ensure individuals with sickle cell disease have access to all medications and treatment forms, including services covered under Medicare and Medicaid programs
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Notes approximately 3,870 Pennsylvanians were living with sickle cell disease in 2019-2020, while over 100,000 Americans are affected nationally
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Addresses barriers to care including limited geographic access, financial constraints, specialist availability, transportation needs, and social factors such as stigma and bias
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Calls for promotion of affordable interventions including community education, health professional training, and newborn screening for early diagnosis
Legislative Description
Ensuring greater access to sickle cell disease treatments and designating the Department of Health to conduct a comprehensive and coordinated data collection effort to better understand and quantify the scope and impact of sickle cell disease on patients, communities and states throughout the United States.
Last Action
Referred to Health
9/4/2025