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PA SR127
Resolution
Status
6/20/2025
Primary Sponsor
Martin Flynn
Click for details
AI Summary
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Designates June 23, 2025, as "Dravet Syndrome Awareness Day" in Pennsylvania, aligning with International Dravet Syndrome Awareness Day
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Dravet syndrome is a rare, catastrophic form of epilepsy beginning in infancy, affecting approximately 1 in 15,700 individuals, caused primarily by a mutation in the SCN1A gene
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The condition is characterized by prolonged and frequent seizures, developmental delays, and high risk of sudden unexplained death in epilepsy, with no known cure
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Urges all Pennsylvania residents to learn more about the disorder and support individuals and families living with its challenges
Legislative Description
Designating June 23, 2025, as "Dravet Syndrome Awareness Day" in Pennsylvania.
Last Action
Referred to Rules & Executive Nominations
6/20/2025