PA SR181

Designates October 25-31, 2025 as "Epidermolysis Bullosa Awareness Week" in Pennsylvania, also known as "Butterfly Children Awareness Week"

Epidermolysis Bullosa (EB) is a rare genetic connective tissue disorder causing fragile skin and recurrent blistering, with no known cure

EB affects approximately 1 in 20,000 births (about 200 children per year) and exists in five types: EB Simplex, Junctional EB, Dystrophic EB, Kindler EB, and EB Acquisita

Severe forms cause constant pain, scarring, disfigurement, and disability, with many children not surviving past their third decade of life

Calls for greater public awareness and increased support at national, state, and local levels for patients and families affected by the disorder