TN HB0502

TennCare may provide coverage for diagnosis (including genetic testing) and treatment of Kleefstra syndrome, a rare genetic disorder caused by EHMT1 gene mutations affecting multiple organs and causing developmental delays, intellectual disability, seizures, and other conditions

Coverage must be provided in the same manner and extent as existing coverage for autism spectrum disorder, Down syndrome, and similar genetic disorders, when determined medically necessary

Benefits may include early intervention services, appropriate therapies, medications, interventive programs, education, treatments, clothing, devices, and equipment throughout the enrollee's lifetime

TennCare director is authorized to apply for federal waivers as necessary to implement the coverage

Effective date: July 1, 2025