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TX HB107
Bill
Status
6/20/2025
Primary Sponsor
Lauren Ashley Simmons
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AI Summary
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Establishes a statewide sickle cell disease registry maintained by the Department of State Health Services to serve as a centralized repository of accurate case records to aid in treatment and cure research
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Requires health care facilities, including licensed hospitals and facilities providing diagnostic or treatment services to sickle cell patients, to report case data to the department in a prescribed format
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Mandates individual consent (or consent from a legally authorized representative) before any personal information can be included in the registry, with the right to withdraw consent at any time
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Protects all registry information as confidential and not subject to public records requests or subpoena, with data release permitted only for statistical purposes that prevent identification or with individual consent
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Requires annual reports to the legislature on registry information; implementation is contingent on legislative appropriations, with an effective date of September 1, 2025
Legislative Description
Relating to the establishment of the sickle cell disease registry.
Health
Last Action
Effective on 9/1/25
6/20/2025