TX SB820

Establishes a statewide sickle cell disease registry to be maintained by the Department of State Health Services as a centralized repository of accurate case records to aid in treatment and cure efforts

Requires hospitals and other health care facilities that provide diagnostic or treatment services to sickle cell patients to report case data to the department in a prescribed form and manner

Authorizes the department to execute contracts, receive and analyze data from health care facilities, and compile and publish statistical studies for use by physicians, medical personnel, and the public

Mandates the executive commissioner adopt rules to protect patient confidentiality in accordance with HIPAA and state medical privacy laws (Section 159.002, Occupations Code)

Requires the department to submit annual reports to the legislature on registry information and may collaborate with sickle cell disease reporting organizations and research institutions on additional publications