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US SR292
Resolution
AI Summary
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Designates June 19, 2025, as "World Sickle Cell Awareness Day" to increase public awareness about sickle cell disease (SCD) in the United States and globally
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Calls on the Department of Health and Human Services to create global policy solutions supporting newborn screening programs, therapeutic interventions, and support services for SCD
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Supports eliminating barriers to equitable access to innovative SCD therapies, including cell, gene, and gene-editing therapies, in the Medicare and Medicaid systems
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Encourages the President to form a Sickle Cell Disease Interagency Group including HHS, VA, NIH, FDA, and CMS to develop policies supporting equitable access to treatments
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Urges addressing healthcare bias faced by SCD-affected populations, noting approximately 100,000 Americans have SCD, with 1 in 365 African-American births and 1 in 16,300 Hispanic-American births affected
Legislative Description
A resolution expressing support for the designation of June 19, 2025, as "World Sickle Cell Awareness Day" in order to increase public awareness across the United States and global community about sickle cell disease and the continued need for empirical research, early detection screenings, novel effective treatments leading to a cure, and preventative care programs with respect to complications from sickle cell anemia and conditions relating to sickle cell disease.
Health
Last Action
Referred to the Committee on Foreign Relations. (text: CR S3476)
6/18/2025