Loading chat...
US SR620
Resolution
AI Summary
-
Designates February 28, 2026, as "Rare Disease Day" in the United States
-
More than 30 million Americans are living with at least one of over 10,000 known rare diseases, defined as conditions affecting fewer than 200,000 individuals
-
Approximately 95% of rare diseases still lack FDA-approved treatments despite advances in research
-
Marks the 43rd anniversary of the Orphan Drug Act (1983), which enabled advances in rare disease research and treatment
-
In 2025, 23 of 46 novel drugs approved by the FDA's Center for Drug Evaluation and Research were for rare diseases and received orphan-drug designation
Legislative Description
A resolution designating February 28, 2026, as "Rare Disease Day".
Health
Last Action
Submitted in the Senate, considered, and agreed to without amendment and with a preamble by Unanimous Consent. (consideration: CR S716; text: CR S711)
2/26/2026