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VA HR115
Resolution
Status
Passed
2/16/2026
Primary Sponsor
Leslie Chambers Mehta
Click for details
AI Summary
- Commends the International Rett Syndrome Foundation as the leading research, family support, and advocacy organization for individuals with Rett syndrome
- Recognizes Rett syndrome as a rare postnatal genetic neurological disorder that almost exclusively affects young girls, causing impairments in speech, coordination, and motor skills
- Notes that more than half of those diagnosed lose the ability to walk, with many experiencing seizures, scoliosis, and irregular breathing patterns
- Acknowledges the first FDA-approved treatment for Rett syndrome launched in 2023, with research suggesting neurological symptoms may be reversible even decades after diagnosis
- Recognizes October as Rett Syndrome Awareness Month and directs the Clerk of the House to present a copy of the resolution to the foundation
Legislative Description
Commending the International Rett Syndrome Foundation.
Last Action
Bill text as passed House (HR115ER)
4/16/2026
Full Bill Text
No bill text available