VT H0293

Department of Health health equity data reports to the legislature reduced from annually to every three years, beginning in 2028, with reports due by January 15

Cancer registry confidentiality provisions updated to require approval from an institutional review board or privacy board (under 45 C.F.R. § 164.512) instead of an academic committee for human subjects protection when sharing data with researchers

Amyotrophic lateral sclerosis (ALS) registry disclosure requirements similarly updated to require institutional review board or privacy board approval for researcher data sharing agreements

Commissioner must obtain written assurances (rather than a written agreement) from registries, agencies, or researchers that identifying information will remain confidential before releasing cancer registry data

Effective date: July 1, 2025