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VT HR0009
Resolution
Status
5/28/2025
Primary Sponsor
Elizabeth Burrows
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AI Summary
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Urges all Vermont state agencies, departments, and offices to protect the civil rights, medical confidentiality, and personal privacy of Vermonters diagnosed with autism
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Responds to U.S. HHS Secretary Robert F. Kennedy Jr.'s announced plans to establish a federal autism research database compiling data from insurance claims, electronic medical records, and wearable devices
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Expresses concern about potential use of Vermonters' sensitive, personally identifiable health information without specific and informed consent
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References Illinois Executive Order 2025-02 as a model for state-level privacy protections related to autism data collection and disclosure
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Directs the Clerk of the House to send copies to the U.S. HHS Secretary, NIH Director, Vermont Congressional Delegation, Vermont Secretary of Human Services, Vermont Human Rights Commission, and the Governor
Legislative Description
House resolution urging that all State agencies, departments, and offices protect the civil rights, medical confidentiality, and all aspects of personal privacy of Vermonters who have been diagnosed with autism in light of the Secretary of the U.S. Health and Human Services’ recently announced plans to establish an autism research database and other databases related to autism
Last Action
Adopted
5/29/2025