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VT SR0015
Resolution
Status
5/28/2025
Primary Sponsor
Tanya Vyhovsky
Click for details
AI Summary
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Urges all Vermont State agencies, departments, and offices to protect the civil rights, medical confidentiality, and personal privacy of Vermonters diagnosed with autism
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Responds to U.S. HHS Secretary Robert F. Kennedy Jr.'s announced plans to establish a federal autism research database compiling insurance claims, electronic medical records, and data from wearable devices
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Expresses concern about potential use of sensitive, personally identifiable health information without specific and informed consent, despite federal promises of privacy
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References Illinois Executive Order 2025-02 as a model for state-level protections limiting collection and disclosure of autism-related personal information
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Directs the Secretary of the Senate to send copies to U.S. HHS Secretary, NIH Director, Vermont Congressional Delegation, Vermont Secretary of Human Services, Vermont Human Rights Commission, and the Governor
Legislative Description
Senate resolution urging that all State agencies, departments, and offices protect the civil rights, medical confidentiality, and all aspects of personal privacy of Vermonters who have been diagnosed with autism in light of the Secretary of the U.S. Health and Human Services’ recently announced plans to establish an autism research database and other databases related to autism
Last Action
As adopted by Senate
5/30/2025