WA HB1444

Requires Washington Medicaid to cover rapid whole genome sequencing beginning January 1, 2026, for enrolled infants up to one year old receiving care in intensive care, neonatal, or high acuity pediatric units

Coverage applies when the infant has an unknown medical condition with specific indicators including multiple congenital abnormalities, unexplained early-onset epilepsy, complex neurological symptoms, cardiac issues suggesting genetic causes, or abnormal response to standard therapy

Rapid whole genome sequencing must deliver results in less than 14 days and includes patient-only testing as well as duo/trio testing with biological parents, plus pretest and posttest counseling

Reimbursement for the sequencing must be paid separately from any capitated or bundled payment arrangements unless providers have negotiated an increased rate that includes this service

Legislative findings cite that 80% of rare diseases are genetic, 30% of children with rare diseases die before age five, and rapid sequencing can identify genetic disorders in days versus four to six weeks with other testing methods