WA SB5064

Establishes an advisory council on rare diseases within the University of Washington School of Medicine to advise the Secretary of Health on research, diagnosis, treatment, and education

Secretary of Health appoints 12 voting members serving three-year terms, including clinicians, researchers, patients, caregivers, patient advocates, and life sciences industry representatives from both eastern and western Washington

Council responsibilities include studying rare disease incidence and prevalence, identifying effective diagnosis and treatment strategies, recommending provider education improvements, and developing public awareness strategies

Requires biennial reports to the governor and legislature beginning December 1, 2026, with recommendations for programs supporting rare disease patients

Defines rare diseases as those affecting fewer than 200,000 people in the United States (over 7,000 such diseases affect approximately 30 million Americans, 50% of whom are children)