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WI AR3
Resolution
Status
2/19/2025
Primary Sponsor
Barbara Dittrich
Click for details
AI Summary
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Designates February 28, 2025, as Rare Disease Day in Wisconsin, aligning with the National Organization for Rare Disorders (NORD) nationwide observance
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Nearly 10,000 diseases are classified as rare in the U.S. (each affecting fewer than 200,000 people), collectively impacting 25-30 million Americans, or approximately 1 in 10 people
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More than 800 drugs and biologics have been FDA-approved for rare disease treatment, though millions of Americans still lack approved treatments for their conditions
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Individuals with rare diseases commonly face diagnosis delays, difficulty finding medical experts, and limited access to treatments or ancillary services
Legislative Description
Observing February 28, 2025, as Rare Disease Day in Wisconsin.
Last Action
Representative McCarville added as a coauthor
4/30/2025