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WI AR3

Resolution

Status

Passed

2/19/2025

Primary Sponsor

Barbara Dittrich

Click for details

Origin

State Assembly

2025-2026 Regular Session

AI Summary

  • Designates February 28, 2025, as Rare Disease Day in Wisconsin, aligning with the National Organization for Rare Disorders (NORD) nationwide observance

  • Nearly 10,000 diseases are classified as rare in the U.S. (each affecting fewer than 200,000 people), collectively impacting 25-30 million Americans, or approximately 1 in 10 people

  • More than 800 drugs and biologics have been FDA-approved for rare disease treatment, though millions of Americans still lack approved treatments for their conditions

  • Individuals with rare diseases commonly face diagnosis delays, difficulty finding medical experts, and limited access to treatments or ancillary services

Legislative Description

Observing February 28, 2025, as Rare Disease Day in Wisconsin.

Last Action

Representative McCarville added as a coauthor

4/30/2025

Committee Referrals

Rules2/3/2025

Full Bill Text

No bill text available