WI SB570

UW-Madison Department of Population Health Sciences must establish and maintain a statewide Parkinson's disease registry within 19 months of the bill's effective date to track incidence, prevalence, and outcomes of Parkinson's disease and related parkinsonisms

Health care providers diagnosing or treating Parkinson's disease must report patient information to the registry, with patients able to opt out of full data collection while still having their diagnosis incident reported

Registry data may be shared with other states' registries, federal agencies, local health officers, and researchers who meet confidentiality requirements and obtain institutional review board approval

A public website must be created with annual reports on disease incidence/prevalence, a dashboard with 5 years of historical data, and patient resources

All identifying information is confidential, protected from subpoena, and inadmissible as evidence in any legal proceeding