WV HB3437

Requires express, separate, written, voluntary, informed consent from parents or guardians before conducting any newborn genetic screening, with no exceptions or waivers permitted

Mandates that blood spots collected for newborn screening be destroyed within three weeks after test results are received unless parents provide explicit written consent for retention

Prohibits retained blood samples or test results from being used for research, public health studies, forensics, law enforcement, or any other purpose without additional separate written consent

Directs the Secretary of Health to propose rules limiting blood collection from newborns to only the amount necessary for screening, with additional collection requiring separate consent

Allows individuals who were minors when their blood spots were retained to provide their own consent as adults for any future use of their samples or test results